Energy today! - FSGS Sucks

Today is the first day in 3 weeks that I've woken up with energy and no nausea.  Granted, last night I thought I was going to pass out from pooping :), but that's in the past.

I'm trying to take advantage of it.  Izzy and I are listening to music, cleaning the house and occasionally having a little dance party.  I'm not sure how long it's going to last (hopefully forever :) but I best get back to it before this chair sucks me in and ruins the rest of the day.

Today has been rough - FSGS Sucks

Yes, I think I'm going to follow every post title with FSGS sucks.  That is, unless I actually get some GOOD news.  But since it's been so friggin' long since that's happened, I imagine that'll happen pretty infrequently.

Man, I'm tired.  That goes without saying.  But for the last 3 weeks, life has been even less pleasant than normal.  Okay, I guess I can't say "life", but my physical condition is hard to deal with daily.  I've been fighting nausea and diarrhea for 3 straight weeks.  3 straight weeks.  I thought it was just some bug, but not now.  I think this is part of it and after chatting with some of my other fellow FSGS sufferers, I'm even more convinced.  And now I'm thinking, "Seriously???  Are you friggin' kidding me????"

As if dealing with this disease wasn't bad enough.  When it starts to affect me physically, that's when I fear I'll lose a bit of myself to it.  It's one thing to be tired, but it's a completely different thing to have to sit at work all day and fight the nausea...pray that it doesn't strike in the middle of a meeting.  I know...probably more information than anyone would want, but it's real.  It's my life.  It's hell.

I can't tell you the sheer joy I feel sitting here with my feet up and my jammies on.  Joacim's watching "Deadliest Catch" and Izzy's watching Diego.  The dogs are finally settled, the cat's snuggled up next to Izzy, and I am resting for the first time today.  God I hope I get to sleep in tomorrow and enjoy this just a little bit longer ;)

I'm not going to pretend - FSGS sucks

Hi, my name is Jenn and have FSGS (sounds like an opening statement in an AA meeting, doesn't it?)

I have a personal blog that I've written in from time-to-time about my kidney disease, but something in that keeps me from being "real".  That blog was originally started to keep family and friends up to date with my daughter, and since I created it, I've added various things in it, including this kidney disease.

But I feel, sometimes, that the darkness that hangs over me from this disease might cloud the other blog, so I'm going to start posting over here about it.

Who knows what will come up over here, but I need an outlet, and this shall be it!

Thanks!