bitch moan whine : FSGS Sucks

Well, the ankle bones were short lived. I mean, I'm SURE they're in there somewhere, but you'd have a hard time telling by my current state.

Gravity is my best friend, but also my worst enemy. Apparently, the only way to keep the swelling down is to keep them elevated. Imagine the convenience of having a life where one could do this all of the time. Unfortunately, I am not that one. My feet, once again, look like they'd be better suited for the Stay-Puft Marshmallow Man in Ghostbusters.  Ahh...yes, I see the resemblance.

After a cursory review of my other blog, I realize that I've been dealing with this swelling since the middle of December.  Dayum.  I thought it had been 3 or 4 months at the most, but THIS freaks me out.  Maybe that means it's never going away.  Maybe that means you'll all have to hear me bitch about this.  Que horrible!!!

And yes, I do have another blog.  If anyone wants to hear about happier things in my life, including my beautiful little girl, handsome husband, rambunctious hounds and a psycho kitty, head on over to my personal blog.  I tend to put on the bitchy things about my disease here, because, well...that's what I started this damn thing for.

Today, I probably pushed it a bit too hard.  I worked from home on Thursday, and ended up staying home again on Friday because my little girl was sick.  Unfortunately, that didn't allow me a lot of lounging time, as indicated by my slightly swollen tootsies last night.  Today, we headed out for an event downtown, and when that got too annoying we headed to the zoo.  Lemme say that maybe it was just me, but EVERYTHING was annoying today.  After about only 10 minutes at the zoo, we bailed and headed home.  I was just redneck/hilljack/hillbillied out.  And I knew that there was no way my feet were going to make it the whole zoo trip, so we came home and I put my feet up.

I've been working in my office the last couple of hours, trying to create some semblance of order, but the funny thing is that this requires me to sit in a chair with my feet dangling...and I'm sure you can imagine what my feet look like at this point.  Yes, puffy puffy puffy.

Since I can no longer feel my toes, I figure I might as well try to finish up in here.  Hopefully tomorrow will be better.

P

Hello there, ankles! : FSGS Sucks

Yesterday was rough.  I'm sure I've written this before, but it was the WORST swelling that I've had so far.  I had to dig in my shoe supply to find something to fit on them in the morning, and even then, they were cutting in.  My feet feel deeply bruised....all over, so anything on my feet creates sometimes unbearable pain.  It got so bad yesterday that I came home and asked my boss if I could work from home today in order to keep my feet elevated, which is exactly what I've done.  My butt hurts because I've done NOTHING except for lie here on this sofa, but it's working.

Gravity is truly the only thing that's consistently worked so far, which is pretty damn inconvenient.  I'm almost scared to get up from this sofa for fear that my feet are going to swell so fast.  See this ankle bone in the photo below?  Yeah, I'd kinda like to see that more often.

Sadly, the swelling had gone down considerably last night, but seemed to come back as I was sleeping, which means the ONLY position to reduce the swelling is feet above heart.  That's not easy to pull off consistently if I want to have ANY sort of a life.  Not much I can seem to do right now...I'm working on my sodium intake, but that's about all I can do.  Hopefully they don't swell up overnight.

These are my thoughts right now : FSGS Sucks

I wanted to take a minute to document exactly what I'm thinking right now...

DAYUM!  My feet are HUGE!
My knees hurt.
Why is my left leg bigger than the other.
I love salt.
As evidenced by the bag of chips that Izzy and I are snacking on.
How much bigger can my feet get, really?
I found it IMPOSSIBLE to intake <1000mg of salt.
I need a personal menu-planner and chef.
I want to go outside and play with Izzy, but it's TOOO FREAKIN' HOT OUTSIDE.
I'm tired of waking up bathed in sweat.
Is there any way I can rig up a workstation that will allow me to lie down with my feet elevated and still edit photos?
I'm weak.
I can't believe how big my ass and thighs have gotten.
How in the HELL am I going to lose this weight.
Will the swelling ever go away?  Will it at least get better?
I miss running.
I'm glad that Izzy's old enough to hand me a chip when I ask her to :) (that's probably bad, isn't it?
I'm glad I work for a company that understands, and is letting me work from home tomorrow so I can keep my feet elevated.

Thankful for family today : FSGS Sucks

So, this weekend was my daughter's birthday.  Well, it was actually last Thursday, but we were having the party on Saturday.  And, wouldn't you know it, it was hot as hell.  Seriously.  Hot.

And my feet were not being very accommodating.  I'm just thankful that my family tried to help me out.  They kept telling me to sit down and put my feet up, and so I did.  It was hard for me..made me feel SOOO guilty, but the pain of walking outweighed that guilt.

They helped me in soooo many ways this weekend, and I'm terribly grateful.