Wednesday, July 13, 2011

Where did they go? : FSGS Sucks

I've got a pretty awesome community of people with FSGS, and I'm going to guess that I'm not alone in this, but do you guys look back at the friendships you had before and after diagnosis, and wonder why some of them changed?  Or do you have those people that kept telling you that they'd be there for you, but all you hear are crickets.

For me, I don't want to have to remind people them that I'm here..to remind them that I'm going through my own little bit of hell sometimes, or also to share some good news.  I wish THEY would remember ME all by themselves.  There were quite a few people that said they'd be there for me, but months go by before I hear from them.  And listen, I GET that life gets busy, but how much time does it really take to make contact?  I mean, I'm puttin' it all out here on this blog...people can pretty easily check to see how I'm doing.  You know what makes me the happiest?  When someone comments on one of my blogs.  That shows that someone took the time to read it, and better yet, took the time to reach out.  I'm guessing the effort took all of a couple of minutes.  That's all it takes for me when I do it.

I'll admit, I hold a grudge too.  That's certainly not a redeeming quality of mine, and I'm working on it, but when my feelings get hurt, it's REALLY hard for me to get past it.

Luckily, there ARE people that surprise you...people that you don't have NEARLY the history with that step up and fill that need.  Hopefully you guys know who you are, and if I haven't said thank you already, THANK YOU.  Thank you for keeping me in your thoughts, for listening to me bitch and moan, for taking my mind off of things sometimes.  Thank you for making me feel loved.  :)

Transplant / Living Donor Info for me (edited)

I wish I would've had this post ready because I had so many people reach out to me after the last one that wanted to share my info.  I&#...