Tuesday, September 20, 2011

Pooped : FSGS Sucks

No, this isn't a post about my colitis issues (although those are not so fun either) but I got so tired of writing the post title "Tired" that "Pooped" was something different.

I stayed home from work today because I have been UTTERLY EXHAUSTED the past couple of days.  I slept until noon this past Saturday (thank you, Joacim) but it just isn't enough to try to catch up on the weekends sometimes.  I slept until noon again today, and I'm STILL tired.  I think I could lie on the sofa the rest of the day, floating endlessly in and out of sleep.

Funny thing is that I think the need for sleep indicates something for me.  My voice has turned quite manly in my slumber, and my eyes are, once again, puffy and swollen.  Super.

And I was just telling Joacim the other day how good I've felt lately.  I had been feeling like I have a lot more sustained energy lately, but that's all gone today. I thought if maybe I did some yoga that it would trigger some energy...still waiting to see if I can summon up enough energy for a downward-dog...gotta be careful that my eyeballs don't pop out of my head!

Sunday, September 18, 2011

Why I love my friends : FSGS Sucks

Because as soon as I put the call out for donations, I raised $815.  So far.

But I'm not done begging yet.  I want a t-shirt...and that only comes with $1000....

Yeah, I'm greedy like that, but I also want donations to help find a cure for this damn disease.

Our 2nd annual Nephcure Walk is going to be held on October 22, 2011 at Garfield Park, on the southside of Indianapolis.  I'm soliciting donations AND friends to come and join me.  It will be a small affair, but a very important one for me.  I had dear friends and family attend last year, and I hope to see the same and MORE!

Click on the red thermometer to the right to sign up and donate!

Transplant / Living Donor Info for me (edited)

I wish I would've had this post ready because I had so many people reach out to me after the last one that wanted to share my info.  I&#...