Wednesday, January 11, 2012

Enormous : FSGS Sucks

Why is this post titled "Enormous"?  Because, my dear friends, that is EXACTLY how I feel.  I have felt this bloat coming on for a few days now, and I've dreaded it.  I've had a good run of being "skinny" and I knew it had to end sometime, but I secretly harbored the hope that maybe...just maybe....the swelling would be merciful and forget about me.

I started to notice that my ankles were a bit larger on Sunday....then it was harder to bend my knees yesterday.  I woke up this morning and my stomach was a bit distended, which is odd considering how good it's been for the last 3 or 4 weeks, and today, I sat there feeling miserable as my rib cage swelled to the point of making my bra too tight.  It's hard to breathe right now.  It's been fa-reaking awesome.

I'm just wondering why this always seems to happen right before I have to go see my clinical trial folks (which I'm doing tomorrow).  This is the last appointment that I have with them in Cincinnati, and I was SO hoping that they could see me as "normal".  Well, hopefully they'll keep reading this blog after I'm done bothering them :)

And hopefully I'll feel better tomorrow.

Transplant / Living Donor Info for me (edited)

I wish I would've had this post ready because I had so many people reach out to me after the last one that wanted to share my info.  I&#...