Monday, January 19, 2015

First time solo

I'm spending my very first night without Joacim since I started dialysis.  We pushed it out as long as we could, but we eventually knew that he'd have to travel, and now is as good a time as any.  There isn't anything eventful happening (hopefully not, anyway :) this week, so we should be good.  I have a couple of early meetings far away, and I need to figure out how I'm going to navigate that with Izzy, but I'll make it work somehow.

Dialysis is going well still.  I've had a few more cramps, but I'm also hoping that my workouts are contributing to them somewhat...muscles seem to be a bit more "touchy" lately.  I did pilates on my reformer on Saturday, and I was INCREDIBLY sore on Sunday (but the good kind of sore :) so I decided to rest.  I've done some sort of exercise every day (except for 3) so far this year, and I'm very proud of that.  It wasn't easy to get started again, and it isn't always easy to stick with it, but I'm finding that I feel better when I do some sort of exercise, even if it's only 30 minutes of pilates, or a shorter yoga class....anything is better than nothing.

I hope this helps to offset the extra 500 calories from the dialysis solution.  Some days I'm not as hungry as others and I don't worry about it too much.  But then there are THOSE days where I feel like I'm snacking all day.  I have a few of the in a row, and I see my weight climb, and PANIC sets in.  But then I have a day like Sunday (started to feel REALLY bad late afternoon...horrible gas pains) where I don't eat much at all, and the weight just falls off.  I ALWAYS need to remind myself that this is fluid balance, not weight swings.

We planned our vacation this past weekend as well for the spring.  The first place we selected was a home to rent on Don Pedro Island off the cost of Florida.  This should've been no big deal, but there was a ferry that you had to take from the mainland to the island, and I was worried that there would be an issue with my dialysis supplies being delivered to that.  We ended up selecting another home for the week that's on the mainland just to ensure safe delivery (the other place ended up being booked too).  This is the first time I'll be traveling on dialysis so I'm hoping all goes well.  The house we rented has a private, screened-in pool, which will be great for Izzy, but I won't be able to enjoy it this year.  At least we're close to the beach where I CAN swim :)

Transplant / Living Donor Info for me (edited)

I wish I would've had this post ready because I had so many people reach out to me after the last one that wanted to share my info.  I&#...