tag:blogger.com,1999:blog-8508532915941866475.post3376882638189980506..comments2024-02-01T01:57:33.808-06:00Comments on FSGS Sucks: Woohoo! Randomization and some other crap : FSGS SucksStoraloppanhttp://www.blogger.com/profile/13162542951417469191noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-8508532915941866475.post-87176665907854020492011-05-28T23:22:48.183-05:002011-05-28T23:22:48.183-05:00My swelling went down when I went to a low allerge...My swelling went down when I went to a low allergen diet (no gluten, no dairy,no egg). It was difficult with low salt too but may be it will work for you too. The closest diet similar to it is the GFCF diet for autism. It also helped with my proteinuria.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8508532915941866475.post-29851666089682143192011-05-28T05:08:11.611-05:002011-05-28T05:08:11.611-05:00I gave up sandals when my feet got like that. Good...I gave up sandals when my feet got like that. Good tight socks helped keep my feet less swollen, but unfortunately still kept the edema in my ankles. Hurt like crazy - all that extra fluid! <br /><br />I've got a good support group of folks on Facebook, too. We mostly came from an email listserv that kept getting spammed a few years back and gave that up!Rob Monroehttps://www.blogger.com/profile/15213481414668281312noreply@blogger.comtag:blogger.com,1999:blog-8508532915941866475.post-36422037889113546532011-05-26T10:12:03.229-05:002011-05-26T10:12:03.229-05:00Hi Jenn! I came to find your blog through NephCure...Hi Jenn! I came to find your blog through NephCure's post on Facebook, and I agree 100% - FSGS does suck! I've personally been dealing with it since 1986 but it hasn't been until recently that I have found NephCure and others with a similar story. For some reason, it makes the journey just a tad easier. I am curious to know...what study are you participating in?Jenny Moorehttps://www.blogger.com/profile/03938419046702065969noreply@blogger.com