Wednesday, May 1, 2013

Clinical Trial - Infusion #2 - FSGS Sucks

I had my 2nd infusion last Thursday.  I had to wait almost 2 hours for the drug to be prepared prior to the infusion, but no other hiccups :)



Isn't this crazy looking?  It's a little safety that goes over the IV needle once it's pulled out.  So.  Cool.

more blood

This is my less than interesting view.


I had to have blood drawn on the other arm after the infusion was over.


I'm not experiencing any side effects, that I know of. I thought I was getting a lot of bloody noses after the first infusion, but now I'm thinking that might be more allergy related than clinical trial related.  I AM pretty swollen, but that's nothing new.  I'm also very very sleepy, which is getting frustrating.  No matter what time I go to bed, I'm exhausted when I wake up.  I drove to Eau Claire yesterday and had to stop at a grocery store on my way home to get a snack to help keep me awake.  It was only a 2 1/2 hour drive.  I'm heading to North Dakota next week...guess I better bring LOTS of snacks to help keep me awake ;)

Transplant / Living Donor Info for me (edited)

I wish I would've had this post ready because I had so many people reach out to me after the last one that wanted to share my info.  I&#...