Why is this post titled "Enormous"? Because, my dear friends, that is EXACTLY how I feel. I have felt this bloat coming on for a few days now, and I've dreaded it. I've had a good run of being "skinny" and I knew it had to end sometime, but I secretly harbored the hope that maybe...just maybe....the swelling would be merciful and forget about me.
I started to notice that my ankles were a bit larger on Sunday....then it was harder to bend my knees yesterday. I woke up this morning and my stomach was a bit distended, which is odd considering how good it's been for the last 3 or 4 weeks, and today, I sat there feeling miserable as my rib cage swelled to the point of making my bra too tight. It's hard to breathe right now. It's been fa-reaking awesome.
I'm just wondering why this always seems to happen right before I have to go see my clinical trial folks (which I'm doing tomorrow). This is the last appointment that I have with them in Cincinnati, and I was SO hoping that they could see me as "normal". Well, hopefully they'll keep reading this blog after I'm done bothering them :)
And hopefully I'll feel better tomorrow.
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Transplant / Living Donor Info for me (edited)
I wish I would've had this post ready because I had so many people reach out to me after the last one that wanted to share my info. I&#...
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I'm lying here right now in room 6B of the specialty infusion center at the U of M, and it's not going well My first blood press...
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So, for starters, my blood type is O+, so my donor kidney will need to be O+ as well. HOWEVER....if you're blood type is NOT O+, there...
That's a bummer - Hopeful that this morning brought out a less-swelled Jenn.
ReplyDeleteI stumbled upon your story on the Nephcure website and was very excited to see you had a blog! I do as well. It is nice to know there are other people out there who are feeling similar to me and that I am not alone! I too had horrible edema and ascites for the past year and wore those awful TED hose (gosh edema sucks!) and I hope you feel better much soon!
ReplyDeletesending love to your kidneys,
nephron love
http://nephronlove.tumblr.com/
I am also in the FSGS group. They are getting ready to map my veins. My GFR is 15 and protein spill is 10925. I started out at 17000 7 years ago. I just found your Twitter and then your blog today. I too have started one to blog my adventure to feeling better... I HOPE!
ReplyDeleteWhat meds are you on? What is the GFR?
Hang in there.
<3