Friday, October 12, 2012

Pumped up but worn out : FSGS Sucks

That's the best way to describe me right now.  It's been another long week, although a teeny bit better than the past few.

I'm sitting here on the sofa, seriously contemplating hitting the hay.  It's with a smile on my face that I look back 10 years ago, remembering what I'd be doing on a Friday night.  I'd just be getting ready to go out to party.  I'd be having some pre-drinks with friends, listening to dance music and getting psyched up for a night out on the town.  And now, I'm psyched up because I got my toenails painted after a delicious dinner of Cocoa Krispies and Fruity Pebbles (not in the same bowl though) before I fell asleep.  Pathetic, but entirely true.

I FINALLY got my office cleaned up today (well, at least 95%....the rest is decorating) and I'm thrilled.  But now I'm super-swollen from standing so much.  I just got out of the shower, and I was shaving my legs, noticing how the swelling is full set in my thighs right now too.

I really hope that it dissipates before tomorrow.  For those of you that don't know, don't remember, or never knew, tomorrow morning is my first walk with the National Kidney Foundation.  The walk is in the morning (aka "no sleeping in") but I'm so excited to meet fellow kidney peeps around the area.  There are at least 2 people that I've made contact with (and I've spoken about both of them on this blog) and plan on meeting tomorrow, and a friend I met in Washington DC back in March during my trip with NKF is going to be in town and has joined my team.  I also have several friends right here that are going with me to the walk to support me, and I couldn't be more thankful to have such amazing people in my life.  THANK YOU :)

The best news of all is that I SURPASSED MY GOAL!!!  Actually, I was one of the top individual fundraisers for this walk, which has allowed me the opportunity to be one of the speakers at the event.  I'll be representing kidney patients, so wish me luck that the wheels don't fall of my wagon as I'm up there on stage :)  Also send good vibes so the rainy weather that was forecast earlier in the week holds off in the morning.  We need the rain, no doubt, but I'd REALLY like it to wait a bit :)

Again, thank you all so much for your support.  Let's get walkin'!


  1. I'm like a proud mama hen & I don't quite know why because if anyone is the mama hen, its you. You are amazing. Look at all of the good you do! Where would I be without you?

  2. So proud of you for getting to (and above) your goal! I knew you could do it! I am looking forward to hearing about your experience with the walk and a whole new group of kidney friends!


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