Iohexol test results....

And, apparently my kidneys are still functioning pretty well.  You think I'd be happy about that, wouldn't you?  Well, I'm not, because I felt that this test would PROVE to the powers that be that I was perfect for a transplant.  But with these results, I'm guessing it's unlikely.

Dr. I at the U wants to send my blood to a lab to get some genetic testing done on it.  According to him, if I have this particular mutation, then my chance for FSGS recurrence after transplant is around 5%, instead of the 30-50% without the mutation.

Unfortunately, at this time, my insurance doesn't cover the test.

And it's $5300.

That's a hefty chunk of change to dish out to get an answer that only helps me if I get a transplant, and that's a BIG if at this point.

So now I'm bummed, and the funk is coming.  I can feel the heaviness because I know that this awful limbo will continue.

What frustrates me (and I know this sounds selfish, but so what) is that I feel like I've tried to do so much to get awareness out about FSGS, and I think it'd be really great if there was some kind of a grant that I could get to pay for this.  Hell...how much money have I raised for this cause?  Probably enough to pay for this test.

I'm just spouting angry words right now....I feel better tomorrow, I'm just a bitter betty right now.