Tuesday, December 20, 2011

Dragging : FSGS Sucks

It doesn't take a set of scales to know that I've gained all of the weight that was lost the last few days. I feel it in every step I take, and anyone can clearly see it in my cankles. And I was just getting comfortable again. It's my own fault, I guess. I've been lax about my meds these last few days, including my diuretics, so I guess I can only go a couple of days without them before this kicks in again. Good to know.



Monday, December 19, 2011

I'm done being sick now : FSGS Sucks

I don't think any of this is FSGS related, but this is my bitching forum, and I've got some bitchin' to do.

So last week was hard.  The stress leading up to my actual last day at Lilly was huge, but I knew that once I walked through the doors for the last time that I would be fine, and I was.  My dear friend, Rebecca, and I went out for some drinks after it and I was all better.  Unfortunately, I woke up on Friday feeling like death.  I was nauseous, had a headache and my skin hurt, AND I had a low fever, so I'm thinking it's some sort of bug.  A friend of mine thought it might be all of the stress too...the letdown of it all finally caught up to me, and there's probably something to that as well.  I tried to get up for awhile, but ended up back in bed by 5:00pm and stayed there the rest of the night.

Woke up Saturday to pretty much the same thing.  I showered, hoping that would make me feel better (no such luck). I was tired of lying in bed, so I moved myself to the spare bedroom and watched old movies all day.  No food sounded good...only tomato juice, grape powerade and popcorn.  I have absolutely no idea WHY it was only those three things but that's what it was.  Oh, wait...and CLEMENTINES.  Thank GOD for clementines this time of the year.

So I'm thinking that I SURELY will feel better on Sunday, but no.  Diarrhea.  Yippee.  I was able to force down some soup, more popcorn, clementines, tomato juice and powerade.  We all took a fabulous nap (sadly, during the Colts' first win of the season), and then I was in bed again by 9pm.

And so this morning, when I woke up and wasn't nauseous, I was pretty excited.  I had breakfast (first time in 4 days) but I was SO freakin' thirsty...I think I filled my belly with water.  I headed out to the mall to pick up a couple of things and was going to get a mani/pedi before my husband's work Christmas party tonight, but I started feeling so bad in the mall that I just headed home.  My tummy was so rumbly that I was afraid what would happen if I stayed!  That's probably TMI, but skip over that part if it offends.  I headed home, laid on the sofa and called the babysitter we had lined up and my husband to let them know that I wouldn't be going to the party tonight.  I feel so guilty, but there was no way I could've sat through that dinner...all of the smells would've sent me running to the bathroom I fear.

So Izzy and I have been hanging out tonight, making cookies for her Christmas party at daycare.  My taste buds are totally off so nothing tastes good or even remotely normal.  I'm trying to force down a salad right now because I know I've got to get SOMETHING in my belly or else I won't be able to sleep.  I just feel awful.  So bloated, gassy and distended as to be uncomfortable.  And now the sneezing has started.  And sneezing for me only leads to one thing...a sinus infection (eventually), so I've got that going for me.

HELLOOOOOOOOOO????!!!  I've got THINGS to do.  PEOPLE to see!  LUNCHES to have!!!  MANICURES to get!!!!  Can someone please FIX this?

Transplant / Living Donor Info for me (edited)

I wish I would've had this post ready because I had so many people reach out to me after the last one that wanted to share my info.  I&#...