Annnnnnddd...my weight is swinging the other day. It started on Monday, and by today, I'm down about 10 pounds for the week. I tried to start keeping track of everything (weight, food, mood, phase of the moon ;) to see if I could draw any conclusions, but honestly, if I'm feeling better, I forget. Maybe SOMEDAY I'll come up with a sustainable system. But I won't be holding my breath.
I had another iron infusion on Monday. This time, I was able to do it at a local hospital, which worked out well. It was a craptastic winter day outside (the best word would be blustery) so a few hours in a warm room with a blankie and some iron is just what this girl ordered.
It looks like coffee, doesn't it? Too bad it's not :) I COMPLETELY fell asleep during this infusion. The last one I had at Mayo was a push, but this was a drip that took around 2 hours, plus another half hour for observation. No biggie...glad it's done, but I don't feel any different..not worse, but not better either.
I've got the clinical trial infusion that begins this Friday, so it's ANOTHER trip back to Mayo. Keep your fingers crossed that I get the drug :)
Oh, and more good news. My "friend" Matt from
www.onekidneymatters.com is GETTING A KIDNEY!!!! CONGRATULATIONS Matt!!!
Glad you are able to infuse closer to home. My fingers are beyond crossed for you on the trial - so grateful that you are willing to put yourself into trials to benefit all of the rest of us. (Truth be told, I want to do trial stuff, but my history is sorted and my cause is now being called into question so I might be moving over to the VA at this point... ugh.)
ReplyDelete