Wednesday, February 8, 2012

This one's for Macy : FSGS Sucks

Macy is this adorable little girl who has FSGS.  She had a kidney donated to her by a family friend and the transplant took place on June 29, 2011 in Chicago.

Please understand that a transplant is not a CURE.  It's another treatment.  And I say this because, and it seems especially so in the case of these kids, that their battle is daily.  It's constant.  It's mom's measuring the amount of water their kids drink every day to make sure they don't drink too much (dialysis) or drink enough (transplant).  It's constantly switching gears, fighting bugs/viruses.  

I bitch a lot, but I still consider myself lucky because I'm stable.  But today, Macy was admitted to the hospital in Denver (where they live) because her creatinine (a measure of kidney function) jumped up (and up is not good).  Hopefully it's dehydration and they can give her fluids and she can be on her way.

I'm just asking people that read this to take a moment and send out a prayer/good vibe/positive energy towards this adorable little girl.  

And if you read this Kelly,  I hope you don't mind but I "borrowed" this photo from your CaringBridge website.  I think it's so important to put a face with every name...

1 comment:

  1. It always kills me to kids suffer through this disease and get to the point of transplant and I've been fighting with the same kidneys for over 16 yrs. My prayers go out to Macy and every person fighting this disease.


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