Friday, June 29, 2012

I'll take my chin back, please : FSGS Sucks

I just looked at myself in the mirror, and realized that my chin is starting to go away. I hate this changed my face completely and makes me feel like one big lump.


  1. You don't look that bad, lol. Don't you hate when people say that. You really do look fine but I get it I lost some weight and then bam back on prednisone, ugh grrrrrr lame!

  2. I think you look fine too, except that I saw you sans water weight. So sorry, Jenn. I know the impact at that point is so beyond what people can calculate - I hope that you don't dwell on that and focus on ways to feel better!

  3. I know how you feel!! I am 2 months into high dose prednisone and the side effects are kicking in big time. I have a hump on my back and my face is almost perfectly round. Looking and feeling very unattractive. I know it is true and it makes perfect sense and I may sound totally vain and self absorbed but I just had another one of my friends say "dont worry about it you look fine, at least you are getting better!" Yes I know that, but this is messing with my head and I dont feel like I am getting better. PREDNISONE SUCKS!!!! Sorry to highjack your blog Jenn, I love your updates.. no one really understands until they are on this damn drug.

  4. Prednisone is the worst drug!!! I told my transplant team I cant take it, I don't know if they believe me. I hope no one makes me take it again. My arms felt broken, within a week of lowering the dose the pain went away. I'm only on 5 mg every other day now.


Fistula ultrasound and all the worries, again :(

It's been a little over a  month since my fistula surgery, and I had my ultrasound this past Wednesday. I went into this thing thinking ...